Media

NHS Data Strategy

• BMJ: New data strategy for England aims to rebuild public trust June 2022 by Jacqui Wise Digital Health: Government publishes final data strategy for healthcare June 2022 by Jordan Sollof
• Healthcare IT News: New health data strategy announced for England June 2022 by Tammy Lovell
• The Stack: NHS data strategy lauded for “rare willingness to move beyond aphorisms” June 2022 by Eliot Beer
• Civil Service World: ‘Previous digital and data strategies were long in aspiration and short in delivery’: Why this time is different June 2022 by Alex Chisholm

Goldacre Review

• BMJ: New vision for NHS health data has potential to drive health improvement. April 2022 by Bryan Christie
• Times: How we can finally put decades of NHS data to good use. April 2022 by Ben Goldacre
• NHS Confederation: Goldacre Review is important piece of puzzle in setting direction for use of health data for research | NHS Confederation. April 2022 by Dr Layla McCay
• NHS Confederation: Data and research transformation in the NHS: What must be addressed?. April 2022 by NHS Confed
• Digital Health: Goldacre recommends Trusted Research Environments become ’the norm’. April 2022 by Hannah Crouch
• Research Professionals: Health data software projects ‘need more funding’ . April 2022 by Sophie Inge
• Computer Weekly: Goldacre review outlines recommendations on safer use of health data. April 2022 by Angelica Mari
• UK Authority: Goldacre report makes recommendations for data analysis in healthcare. April 2022 by Mark Say
• Digit News: Report Lays Out Plan for NHS to Improve Health Data Usage. April 2022 by Micahel Behr
• Healthcare IT News: Goldacre Review into health data calls for modern open working methods. April 2022 by Tammy Lovell
• HDRUK: Health Data Research UK’s response to the publication of the Goldacre Review. April 2022 by HDRUK
• Health Foundation: Better use of data is vital to NHS recovery – the Goldacre Review is welcome but government must now provide a credible plan. April 2022 by Charles Tallack
• PHG Foundation: Goldacre recommendations for making the most of health data for research. April 2022 by Philippa Brice
• National Health Executive: Independent review calls to improve data transparency. April 2022 by Saskia Hicking
• Pulse: Government could become data controller for patient record copies. April 2022 by Caitlin Tilley
• DARE UK: DARE UK welcomes findings of ministerial review into use of health data for research and analysis. April 2022 by DARE UK
• ABPI: Worth the wait – The Goldacre review. April 2022 by Colette Goldrick

OpenSAFELY

• Gov.uk:Drivers of the higher COVID-19 incidence, morbidity and mortality among minority ethnic groups. May 2022 by SAGE
• News Medical: The effectiveness of sotrovimab vs. molnupiravir in preventing severe COVID-19 outcomes in non-hospitalized high-risk COVID-19 adult patients. May 2022 by Pooja Toshniwal Paharia
• News Medical: Assessment of England’s medication prescribing safety during COVID pandemic. May 2022 by Pooja Toshniwal Paharia
• BMJ: Learn from lessons past to safely unlock the power of health data. May 2022 by Andrew Morris
• Digital Health:TREs in the NHS – how health data sharing is saving lives. May 2022 by Michael Chapman, Susheel Varma, Professor Angela Wood, Dr Will Whiteley
• News Medical:Study explores the waning efficacy of SARS-CoV-2 ChAdOx1 and BNT162b2 vaccines. March 2022 by Shanet Susan Alex
• Hospital Healthcare:Re-hospitalisation and mortality risk higher for COVID-19 patients than the general population. February 2022 by Rod Tucker
• EurekAlert:Hospitalization for COVID-19 linked to greater risk of later readmission or death . January 2022
• News Medical: Risk of severe COVID-19 is rare among fully vaccinated individuals in England. November 2021 by Dr. Sanchari Sinha Dutta
• News Medical: Comparative effectiveness of ChAdOx1 and BNT162b2 COVID-19 vaccines. October 2021 by Dr. Ramya Dwiveldi
• The Guardian: GPs recording low numbers of long Covid compared with survey estimates. June 2021 by Ian Semple
• BMJ:Helen Salisbury: Should patients worry about their data?. May 2021 by Helen Salisbury
• Gov.uk: Unlocking the value of data: Exploring the role of data intermediaries. July 2021 by CDEI
• Economist:The pandemic has spawned a new way to study medical records. May 2020 by Hal Hodson
• Independent: Coronavirus: Underlying health conditions don’t explain higher BAME deaths, say scientists. May 2020 by Shaun Lintern
• ZDNet: This open source project is using Python, SQL and Docker to understand coronavirus health data. June 2020 by Jo Best
• New York Times: Study of 17 Million Identifies Crucial Risk Factors for Coronavirus Deaths. July 2020 by Katherine Wu
• MIT Technology Review: These are the factors that put you at higher risk of dying from covid-19. July 2020 by Charlotte Jee
• BBC: Coronavirus: Living with children ’no increased risk’. November 2020 by Naomi Grimley
• Daily Mail: Parents of schoolchildren do NOT face a greater risk of being admitted to hospital or dying of the coronavirus, study finds. November 2020 by Luke Andrews and Ben Spencer

TrialsTracker

Launching the FDAAA TrialsTracker

• The Scientist: New Automated Tool Monitors Clinical Trial Reporting. February 2018 by Diana Kwon
• BBC: Tool ’names and shames’ hidden drug trials. February 2018 by Chris Foxx
• Wired: Bad results from drug trials no longer have a place to hide. March 2018 by Abigail Beall

Reporting on FDAAA Compliance

• BMJ: Clinical trial reporting: compliance with US rules is poor and not improving, study finds. January 2020 by Jacqui Wise
• Bloomberg: Missing Study Findings Leave Public in Dark and $4 Billion Short Jan. 17, 2020, 11:31 PM. January 2020 by Jeanni Baumann
• ENDPOINTS NEWS: What do Mass General, the NCI and Mayo Clinic have in common? They routinely blow off an FDA rule on posting trial results. January 2020 by Jason Mast
• Medscape: Most Clinical Trials Still Don’t Report Results by Deadline January 2020 by Marcia Frelllick
• The Lancet Respiratory Medicine: Compliance with clinical trial reporting. February 2020 by Talha Khan Burki

EU TrialsTracker Launch

• Telegraph: Public Health England withholding vaccines results making it impossible to establish if drugs could be harmful. September 2018 by Henry Bodkin
• Science: Universities are worse than drug companies at reporting clinical trial results. September 2018 by Tania Rabesandratana
• Reuters: Half of Europe’s clinical trials fail to report results despite EU rule. September 2018 by Kate Kelland

Launching the Prototype TrialsTracker

• Nature: Tracker flags up failures to report clinical trials. November 2016 by Heidi Ledford

COMPare

• Science: Major medical journals don’t follow their own rules for reporting results from clinical trials. February 2019 by Jocelyn Kaiser

OpenPrescribing

• The Times: Tales of ruin and recovery ease the pain of opioid addiction. August 2020 by Katie Gibbons
• Telegraph: NHS issued 2,000 homeopathic prescriptions in 2019 despite ban. September 2020 by Rosie Taylor